We carried out in depth interviews with attendees at the Day Centre. We asked them questions relating to their experiences of decision making, as well as their interactions with professionals who support them to make decisions. They were able to provide examples of both positive and negative experiences of being supported to make decisions for themselves, and explored ways in which they felt they could be further supported in the future.

Watch the interviews below.

 

Themes
  • This theme covers the following topics:

    • How the label of ‘mental impairment’ can create cognitive dissonance – they are told they are adults and need to be independent, whilst also being treated as something different
    • The importance of having fun and doing things outside of a schedule of ‘care’
    • Everyone is different
    • Lack of confidence
    • Desire for a mentor
    • The importance of family
    • Feeling like a burdens
    • The impact of changes of relationship eg romantic partner – carer; parent – carer
    • Expectations about roles in life – gender and more
    • Having to ‘perform’ disability
    • Different presentation in different environments eg at home v at day centre
    • Sexual/romantic relationships
    • Imposed vulnerability ie not being allowed ‘trial and error’ in life or ‘risk take’
    • The different expectations for disabled people
  • This theme covers the following topics:

    • The importance of communication
    • Need for a consistent point of contact or a mentor
    • Feeling they must tell people what they want to hear
    • Different activities bring out different skills/confidence etc
    • Miscommunications and misinterpretations with others
  • This theme covers the following topics:

    • Cutting services
    • Ageing parents
    • Importance of family
    • They are burdens
    • Changes of relationship eg romantic partner – carer; parent – carer
    • Expectations about roles in life – gender and more
    • Sexual/romantic relationships
  • This theme covers the following topics:

    • Importance of having fun a doing things outside of a schedule of ‘care’
    • Everyone is different
    • Loss of confidence
    • Desire for a mentor
    • If we want people to make good decisions, we need to facilitate practice
    • Sexual/romantic relationships
    • Stunted life
    • Imposed vulnerability – ie not allowed to do the trial and errors of life through which we learn – risk taking
    • Different expectations for disabled people
    • Positive risk taking and right to make unwise decisions
  • This theme covers the following topics:

    • What decisions do you make and not make
    • Who helps you to make decisions
    • How could help to making decision be improved
    • What impacts on your ability to make decisions
    • Importance of communication
    • Focus on small decisions by professionals could be red herring
    • Wanting a mentor
    • If we want people to make good decisions we need to facilitate practice
    • Different activites bring out different skills/confidence
    • Preparation for a capacity assessment
    • Difference between functional and executive capacity
Case Studies
Learn more about the project